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Patient and Public Involvement (PPI) in Neuropathic Pain Research: What It is (and is Not), Why It Matters, and How to Build Confidence and Capacity
Topical Workshop
The extent to which patient and public involvement (PPI) has become integrated within pain research varies across the globe. In addition, terminology differs, and the concept of involvement is often confused with engagement or participation. This presentation will provide a definition and overview of what PPI is and is not. Attendees will understand how PPI can be considered and implemented throughout all aspects of the research cycle – from prioritising and identifying relevant research questions to evaluating the impact of the research for policy change. The presentation will also focus on why PPI is essential in neuropathic pain research, highlighting how including the lived experience will enhance research to improve our understanding of pain, clinical outcomes, impacts on policy, and ultimately enhance patient health-related quality of life. Finally, the presentation will cover how to build PPI confidence and capacity in pain research within one’s own research programme and professional organisations. We will assess change in knowledge, attitudes, and beliefs about PPI in neuropathic pain research by capturing information with interactive elements at the beginning, middle, and end of the session.