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Lessons Learned from Lived Experience of Pain: The Patient and Public Partner Perspective
Topical Workshop
Patient and public partners are more involved in pain research now than ever before, yet this way of working collaboratively is still pretty new. What does it actually look like in practice? What has been working? What can improve? Where can we innovate? Patient partners bring much more than their experiences of pain to these collaborative efforts. In this session Joletta will highlight the many ways patient and public partners contribute to neuropathic pain research, education and publishing through the lens of her personal experiences as a patient partner. She will also share the ground-breaking work of IASP’s Global Alliance of Partners for Pain Advocacy (GAPPA), which brings together people with pain, advocates, clinicians, and researchers to advance the equitable integration of lived experience into the study, research, and treatment of pain. She will share what has gone well in all of these efforts, as well as challenges, innovations, and ideas for the future of PPI in pain research.